Sunday, November 20, 2005
What Am I Thankful For?
* (Sing to the tune of ``Raindrops on Roses'')
Sweet nothings from my husband, kind words from children,
Sounds of birds singing, leaves rustling in trees.
Coffee percolating and raindrops that fall...
These are a few of the sounds
That I'm thankful for.
Because I am hearing them for the very first time...
After receiving a cochlear implant
Just a few months ago!
Laurie Pullins, Maryville
Tuesday, November 15, 2005
Before And After Hearing Tests
Monday, November 14, 2005
Wednesday, November 09, 2005
Leaving on a Jet Plane
Some new sounds that I've heard lately:
- Heard Riga walking on the floor above me while I was in the basement
- Sounds of fall: leaves rustling in the wind and falling off the trees
- Understood Steve talking to Marissa from the car in the dark without lipreading
- Talked to Allison, my sister-in-law on the phone for about 15 minutes on Sunday night
I had auditory therapy today and did pretty good for my first appointment. I have trouble distinguishing words that begin and end the same but have a different vowel in them, like "pet," "put," "pout," "pot," "pat," "pit." Had the most trouble with "pit" and "put." I understood short phrases pretty well like "the cat is in the bag", "he looked at the sock", etc. The appointment was only 30 minutes and was over before I knew it.
This little electronic miracle has made such a difference in my life and my confidence level. I cannot believe that I was able to function for so long with my hearing aids as well as I did. But, it is because I was fitted with the right hearing aids at the right time and had good training. All this is helping me make good progress with my CI.
Saturday, November 05, 2005
Give Thanks With A Grateful Heart
I heard a few new sounds this week. I heard a carbonated drink "fizz" over ice when I poured it in my glass. I heard my boss say, "I'll be back in a minute" as she walked past my desk. I wasn't even "listening" for her and was thrilled that I heard her. Jason is home this weekend with Maddie, his cocker spaniel. She is a very sweet and active little dog and her feet pitter-patter so fast on the floor when she is excited!
I am also happy to report that my tinnitus is going away. I don't notice it as much anymore. It seems to be settling down. I think my auditory nerve was mad at me whenever I took my CI and HA off at night because it was not getting any sound. So, it said, "Well, if you are not going to give me sound, I'll just have to make it up!"
I had my hearing tested this week with my CI and HA and tested with a MILD hearing loss! When I get a copy of my hearing test, I will post it. I tested in the 30 -40 hearing dB range and spiked at 20 dB at 6000 hz! This is a big change from the severe/profound range that I've been in for most of my life. Susie, my audiologist tested me with my CI alone and also with my CI & HA together and said that I DO benefit from my hearing aid. My hearing aid seems to round out the sounds that I am not getting yet from my CI. She also did not like the "spike" and says that Bill needs to round that out when I get my next map. That may explain some of the "echoes" and "tinny" sounds that I hear and may also explain why music sounds funny sometimes. On Monday I will have a speech comprehension test done to see how well I am understanding speech with my CI and HA. All this information will be so valuable to Bill when he sets my next map because he will know exactly what adjustments need to be made. (Look to your right on this blog and I will add a link on how to read a hearing test or audiogram. Click on the "NEXT" buttons.)
Susie shared with me that she has been praying for direction about her career and the hearing center that she works in. She would like to do more work with CI patients. Steve and I have talked in the past about how it would be so great for the hearing center to be able to work with CI patients and do the mapping, etc. But, they have to have the funds and resources and be connected with a specific surgeon that will refer them, etc. They also have to have special training from the cochlear implant companies and be qualified. Susie says that she refers at least 3-4 patients a week to Dr. Merwin and another doctor in Knoxville for cochlear implants but those patients have to go somewhere else for their appointments, evaluations, and mapping sessions. The business manager at the hearing center says that they cannot afford it right now. I shared with her that this hearing center has been my "home" for 12 years and that I feel safe there. I just know that there are others who feel the same way I do. I know everyone that works there and am comfortable with them. It was hard for me to leave my "comfort zone" to go to Knoxville and trust another doctor and hearing center with my ears but I really did not have any other options except to go to Nashville or Atlanta. Susie also shared with me that some patients HAVE to go to Nashville (which is three hours away) for their evaluations, appointments, surgery, mappings, etc. and that it is very difficult for them, especially if they have low incomes or transporation issues. She had one patient who was on TennCare and waited for hours to see a Dr. in Nashville, only to find out that the doctor or insurance company didn't have all her information and paperwork. It was hard enough for this patient to get to Nashville and to be turned away and have to start all over again was a big blow. I told Susie that "if they (the hearing and speech center) build it, they will come." I know there are other patients like me who would come to the hearing center for our appointments, mapping sessions, therapy, etc. I am fortunate that I can have my therapy there but I still have to go to Bill for my maps because he is associated with the doctor who performed my surgery. . .So, I will pray for direction for Susie and the Blount Hearing and Speech Center. . .
I am going to go work in the yard outside and do some "listening" on this beautiful fall day. I need to plant my winter flowers and rake leaves, etc. I also have "nursery duty" at church tomorrow and will get to hear the sounds of little children again!
I will close this entry by sharing with you that as I walk with Jesus every day and draw closer to Him, I find that my thankfulness to Him is an ever-growing symphony of praise that flows from my heart to His. As I look around me, I see that our world is full of heaven. There are so many riches that God has given to me and to you. He is always one step ahead of us and answers our prayers in ways that we never imagined. He puts people in our paths to show us kindness, love, and joy. Everything that we have comes from HIM. For that reason alone, my heart is full of gratefulness and thanksgiving.
Hebrews 13:15 (Amplified Bible) "Through Him, therefore, let us constantly and at all times offer up to God a sacrifice of praise, which is the fruit of lips that thankfully acknowledge and confess and glorify His name."
Sunday, October 30, 2005
Birds and Chocolate Pudding
I know I haven't written in here for a while. Actually, I have been busy writing all afternoon since I was asked to be the featured writer for the CI Hear website for November and need to have my story turned in by tomorrow. So, if you are reading this, look to your right, click on the CI Community link and scroll down to the CI Feature Story of the month.
I've been busy "listening" these last few weeks and love all the new things I am hearing and experiencing. My world is filled with the sounds of family, friends, music, and all the little things of life that fills my soul with joy. I am also experiencing some tinnitus (ringing in the ears) that I don't like but that is only temporary and can be adjusted with the right "map." I hear it when I take my ears off at night and it sounds like the wheels of sound are still turning in my head! It is usually gone by morning or it goes away when I put my CI back on. I think I have some sinus issues going on, too, and antihistamines seem to keep the tinnitus from bothering me.
I got my third "map" since I last added an entry to this journal. I had trouble hearing the tones and beeps because of the tinnitus but was still able to get "mapped." I'm still having some CI moments but not as many as before. The new sounds that I heard after I was first hooked up are becoming clearer and more distinct and I can hear them from farther away than before. This morning I heard the kitchen clock while I was standing in the middle of the kitchen. That is progress! The first time when I noticed it, I was standing right next to it. Riga sounds like a horse running through the kitchen with her toenails and dog tags making noise.
I am not really understanding speech yet without reading lips and it may take a while to get to that point. Lately, though, I have been pleasantly surprised when I can pick up a phrase or word without reading lips. Last Sunday night I heard the pastor say "for this we give you thanks" during a long five minute prayer but didn't get anything else. On Thursday night I was sitting in the knitting shop working on some socks that I was making. The store owner, Antje, was sitting next to me placing an order over the phone and I heard about 50% of her conversation! She was basically calling off amounts and numbers like "I need 4 of the number eights, six of the number nines, etc." and I also heard her say, "thank you very much for all your help." I just sat there and smiled as I listened to her! Music is still not as good as I'd like but that will come. Instrumental music and single voices sound great but when there is a combination of voices and muscial instruments, it is hard to pick out the voice singing the songs. Maybe that is normal but I don't know what normal is. And it is worse in church or an auditorium, especially when people clap or make other noise because my processor shuts down the loudest noise that it hears, thinking it is background noise. That can be fixed with another adjustment. My job is to be patient, practice listening, and locate sounds when I can and let my brain do the work.
Also, last Sunday, Steve, Brad, Marissa, and I went to the movies to see "Dreamer." This was my first time seeing a movie since I got my CI. It wasn't close captioned and I was a little lost but I was able to get a basic idea of the story line. The movie theatre was loud and I couldn't get the sound right no matter what I did with the processor. I did hear someone behind me eating popcorn very loudly! I usually wait until movies come out on video or DVD so I can watch them with closed captioning.
Last week, I went to the Hearing Center to talk with Susie, the speech therapist about starting some auditory training. We will start working together next Wednesday. One of the first things she will do is to test my hearing to find out how much I've improved with my CI. She also asked me lots of questions about what I was hearing, what my settings were on my CI, and if I was using my accessories with my kit. I told her that I haven't been using my accessories because I haven't received them yet! She also suggested that I may want to have Bill put one of my old maps back on my processor to see if I do any better with it. (Bradley also said the same thing last weekend when he was home and said "Mom, you did better with your first map than you did with your second and third one.")
Susie also suggested that I practice talking in the dark with Steve or someone that I'm comfortable with. I'm happy to report that Steve and I can talk in the dark!
I also told Susie that I was hearing birds during the day and at night, too, but couldn't tell what kind they were. She told me that there are day birds and night birds and they have different calls. I may have heard an owl the other night. Susie is going to let me borrow some of her sound cards that have the sounds of different birds on them so I can get a feel for what they sound like.
Every day is new gift for me. I know I will have to work hard at listening and that I still have to ask for help every now and then. I am thankful that God has provided this miracle of sound for me and I start each day praising Him when I put my processor and hearing aid on in the morning. For He is my everything, my reason for breathing, for being alive. When I trust Him fully, he will continue to transform my life with His amazing grace.
Sunday, October 16, 2005
Morning Symphony
Morning has broken like the first morning;
Blackbird has spoken like the first bird.
Praise for the singing! Praise for the morning!
Praise for them springing fresh from the Word!
Sweet the rain's new fall sunlit from heaven,
Like the first dewfall on the first grass.
Praise for the sweetness of the wet garden,
Sprung in completeness where His feet pass.
Mine is the sunlight! Mine is the morning,
Born of the one light Eden saw play!
Praise with elation; praise every morning,
God's recreation of the new day!